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DEPARTMENT OF GENERAL MEDICINE RESOURCES FOR FAMILIESResources are listed alphabetically by the name of the disease, problem or topic. Resources for each problem are listed together. Click on the number or letter below to go directly to that section. 0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y ZAADHD (Attention Deficit Hyperactivity Disorder)ADHD information from the Child and Youth Health website ADHD fact sheets from the Royal Children's Hospital - Melbourne Raising Children Network ADHD information American Centers for Disease Control and Prevention (CDC) ADHD website American Academy of Child and Adolescent Psychiatry ADHD website Living with ADHD website - some good resources for home and school. This website is run by Janssen-Cilag, manufacter of Concerta RACP statement on stimulant medication - Statement from Royal Australasian College of Physicians on the use of stimulant medications Stimulant-placebo trials - information for parents on how these trials are run AllergyASCIA website - Australasian Society of Clinical Allergy and Immunology website with allergy resources Act against allergy - Website from manufacturers of Neocate with some good parent information on food allergies and specifically cow’s milk protein allergy Ambulance coverSA Ambulance website - details about how to get ambulance cover. (click Products and Services on left side of page for details, costs etc) ____________________________________________________________________Top of page AnaphylaxisSee allergy Anglicare Family Support ServicesInformation sheet about this service AsthmaAsthma device fact sheets developed by CYWHS
Asthma SA website Asthma information from the Child and Youth Health Website
Asthma fact sheets in multiple languages from Asthma SA Asthma score website - a website to help you assess and track your asthma control National Asthma Council website Autism spectrum disorders (Autism, Asperger Syndrome, Pervasive Developmental Disorders)Raising Children Autism website - this is the new website for families of children with Autism Spectrum Disorders funded by the Federal government as part of their new autism package Autism Spectrum Disorder pages from the Child and Youth Health website
ASD video glossary - This video glossary has 100 videos demonstrating aspects of the disorder. You need to register but it's free. Great for learning more about Autism Spectrum Disorders. Federal Dept of Families, Housing, Community Services and Indigenous Affairs (FaHCSIA) - Website about the Helping Children with Autism package from the Federal Government Department of Health and Aging - website regarding the new Medicare initiatives for children with Autism Spectrum Disorders American Centers for Disease Control and Prevention (CDC) Autism Information Centre website ____________________________________________________________________Top of page
BBedwetting____________________________________________________________________Top of page CChild and Adolescent Mental Health Services (CAMHS) teamsNorthern, Eastern, Western and Country CAMHS teams Southern and their Country CAMHS teams Cardiac diseaseSee heart diseases CarersCarers SA – Website of Carers Australia with links to each state page Carer allowance and paymentSee Centrelink forms Centrelink formsCarer allowance or payment forms - links to all necessary forms Cerebral palsyCerebral palsy information booklet for parents - from Royal Children's Hospital - Melbourne (excellent resource but slightly Victorian focussed) Children of parents with mental illnessChildren of parents with mental illness - Website of the children of parents with mental illness initiative with resources for parents, children and workers Cognitive assessments (IQ and other learning tests) in the communitySee Psychology section Continence problemsContinence aids assistance scheme - Commonwealth Dept of Health and Aging financial assistance scheme for children over 5 with either a neurological cause of incontinence, intellectual disability or another cause of incontinence and have a pension card. Application forms and details are on the website Guidelines for access to incontinence pads via WCH home equipment centre Continence Foundation of Australia (bedwetting section) Continence Foundation of Australia (bowel and bladder section) – excellent resources, fact sheets and booklets on wetting, soiling and constipation ERIC - Education and Resources for Improving Childhood Continence Bedwetting website from Ferring (makers of Minirin) ____________________________________________________________________Top of page DDentalDental services under Medicare – Department of Health and Aging guidelines on which dental services can be claimed under Medicare and how they are accessed Developmental delay or concernsDevelopmental milestones and red flags - Excellent website developed by Queensland Health with a guide to normal development and red flags for each age group Early Childhood Intervention Program - Child and Youth Health program for children 0-8 with possible developmental problems DisabilityContinence aids assistance scheme Disability Information and Resource Centre - South Australian "one stop shop" for disability Family Village - disability resources website There's no such thing as a silly question - SA edition - booklet originally produced by interACT in Victoria and now updated with South Australian information. Intellectual Disabilities website - UK website with articles and resources regarding all forms of intellectual disabilities Disabled parking permit application form Down SyndromeSee Trisomy 21 ____________________________________________________________________Top of page EEczemaEczema care plan from ASCIA - useful simple plan for managing eczema Eczema factsheet – excellent factsheet from Royal Children’s Hospital - Melbourne EncopresisEnuresisEpilepsyChildren’s Epilepsy Program in Melbourne – Excellent resources about epilepsy. Victorian focussed but has generic information. Epilepsy Action Australia – Epilepsy support group Fitness to drive - Austroads website with link to current recommendations regarding medical fitness to drive ____________________________________________________________________Top of page FFact sheets and information for children and adolescentsCYH website - young adults section KidsHealth information for kids KidsHealth information for teens Fact sheets for parentsCYH website - parenting and child health page Better Health Channel Victoria - babies Better Health Channel Victoria - children Better Health Channel Victoria - parenting and families Better Health Channel Victoria - teenagers Children's Hospital - Westmead (there are a number in languages other than English) Kaleidoscope - Hunter Children's Health Network KidsHealth website - parent page Queensland Health (mostly around feeding and development and in multiple languages) Royal Children's Hospital, Melbourne Sydney Children's Hospital (there are a number in languages other than English) You've got what - Dept of Health factsheets for infectious diseases ____________________________________________________________________Top of page HHand problems/abnormalitiesThe Aussie Hands Foundation - The Aussie Hands Foundation offers support for children and adults with hand differences. They provide advice on appropriate educational programs, special equipment, medical and community resources. Health information for parents and childrenSee Factsheets Heart diseasesHeart Center Encyclopedia - Cincinnati Children's Hospital site with excellent pictures of heart conditions especially congenital heart disease ____________________________________________________________________Top of page IImmunisation resourcesSouth Australian Dept of Health immunisation website Australian immunisation handbook IncontinenceSee continence section InformationInfosearch SA - SA Government website with listings of health and community services agencies and resources For health information see factsheets section Intellectual disabilitySee disability section ____________________________________________________________________Top of page KKabuki SyndromeSupporting Aussie Kids with Kabuki Syndrome (SAKKS) ____________________________________________________________________Top of page MMedicAlertMedicAlert website including application form that can be downloaded Mental HealthHeadspace - The National Youth Mental Health Foundation ____________________________________________________________________Top of page PParenting resourcesParenting and child health section of CYH website - multiple resources Parent groups from Parenting SA Parenting easy guides from Parenting SA - excellent guides on a huge variety of topics ABCD Parenting Young Adolescents - good site with lots of tip sheets. Published by Parenting Resource Centre Better Health Channel Victoria - parenting and families Karitane parent information brochures (click on parenting tips tab) NSW Dept of Community Services parenting website NSW Dept of Community Services parenting website - Arabic family resources Patient assistance transport scheme (PATS)Forms and information from Country Health SA website Psychology services outside of WCHFlinders University Psychology Department Clinic Australian Psychological Association find a psychologist search - Find a Psychologist ____________________________________________________________________Top of page RRefugee health resourcesSouth Australian Refugee Health Network ____________________________________________________________________Top of page SSpeech and language difficultiesSpeech Pathology Australia fact sheets Support groupsGenetic Support Groups Victoria - links to large numbers of syndrome support groups. Slightly Victorian focused but a large number of groups are national. Spina bifida and hydrocephalus association of SA ____________________________________________________________________Top of page TTrisomy 21 (Down Syndrome)Down Syndrome Society of South Australia ____________________________________________________________________Top of page VVelocardiofacial SyndromeVelocardiofacial syndrome (VCFS, 22q-) South Australia support group ____________________________________________________________________Top of page These resources are provided to patients and families in good faith by the Department of General Medicine at the Women's and Children's Hospital. It is intended as an information resource only. No liability is accepted by members of the department or the hospital for the information and resources listed. Information gained from these resources should not replace medical advice from your doctor. If you believe you have a medical emergency you should seek emergency help immediately. Links to other web sites are provided for convenience but no liability is accepted for their content. The information provided should not be reproduced in any way without the express permission of the Women’s and Children's Hospital. For feedback or suggestions of other resources please contact Dr Paul Machet via:
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