Jhanvi’s Liver Donation Journey
This is Jhanvi’s story as told by her Mum, Vino for Donate Life Week.
"When Jhanvi was 14 days old she was diagnosed with a rare, life threatening liver disease called biliary atresia (a condition in which the bile ducts outside and inside the liver are scarred and blocked) at the Women’s and Children’s Hospital (WCH).
One year later after multiple treatments, procedures, surgeries, ICU stays requiring ventilator support and life threatening situations, we received a phone call to say a liver donor had been found.
The staff on Rose Ward at the WCH became like our family. Surgeon, Dr Khurana was so kind and thoughtful, explaining the before and after processes to us. Dr Couper figured out the right time that Jhanvi needed her transplant and he directed us to Royal Children’s Hospital in Melbourne for the transplant.
Jhanvi recovered really well after the transplant. The changes were drastic. Her skin, colour, health, mobility, everything improved.
As a family, we would like to thank the donor - their decision saved our little princess's life. It’s a second chance for our family to feel alive and be together. We are so grateful for the donor’s selfless decision and also the donor’s family who supported and respected the donor’s decision. Your loved one will forever live in our heart, and be remembered.
Jhanvi is now 23 months old and is sassy and a warrior. Despite the all the challenges she is really happy and loving child who loves singing and dancing."
Thank you so much to Vino and Beejay, Jhanvi's parents, for sharing her story with us.
To register to be an organ and tissue donor today at donatelife.gov.au and don’t forget to tell your family.